“How about we try that new place that just opened up near
the mall?”
I knew my husband was referring to the new restaurant in
town. In the old days, I’d simply agree and that would be that. But now, living
with ALS, I’ve learned a thing or two about what’s needed to help keep my
adventures in dining just as enjoyable as they were before.
Food, in general, is a touchy subject for many with ALS, and so is accessibility. I always do an online search for the restaurant’s website to thoroughly scrutinize photos and check out their menu. Thanks to the Americanswith Disabilities Act (ADA), places like restaurants have become accessible to all. But when having to navigate walkers, wheelchairs, and mobility devices, one can’t be too careful. Photos of the restaurant’s entrance and interior dining area give me a head’s up to any potential challenges.
Next, I check out their menu offerings and pre-select an
item, plus a backup one. Oh, and what I pick definitely needs to be something I
can bring home in a box. Why? Well, I don’t know about you, but when we’re
seated and our food arrives, the strangest thing happens…
Disappearing food
With my plate in front of me, I adjust my napkin, cut the
first pieces of food and finally look up — only to see that my dining companions are
nearly finished!
What? Have I been transported to another time dimension, or
has the pace of eating become faster?
Disregarding my wonderful husband, who always could consume
an entire meal in only eight minutes flat (15 minutes tops for Thanksgiving
Dinner!), our lives and the world we live in has certainly sped up.
Fast talkers, fast movers, and fast eaters. Even the restaurant staff seems to want to move things along.
Fast talkers, fast movers, and fast eaters. Even the restaurant staff seems to want to move things along.
My solution
So, rather than stressing out about the food on my plate and
trying to keep pace, I focus instead on what’s around me. I know too well that
over time many of us who live with ALS tend to become isolated from outside
activities.
Dining out gives us the opportunity to be among people, soak
up the atmosphere, and see new things. Plus, it’s an automatic boost to our
self-esteem and confidence to know we’re still capable of these types of
excursions.
No doubt about it, ALS has made me appreciate and savor each
of life’s moments. And yes, I’m an honorary member of the “one-thing-at-a-time
club,” so in the end, I don’t mind that I’m carrying my meal home in a box.
Even though no two journeys are alike, and each of our stages
of ALS and rates of progression differ widely from each other, I believe ALS
patients can and should continue to participate in social activities, such as
dining out.
All it takes is: a little pre-planning, the help of your
support team, and a good sense of humor.
------------------------------------
(Image by Rudy
and Peter Skitterians from Pixabay )
(A version of this
post first appeared as my column on the ALS News Today website)
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| Dagmar Munn ALS and Wellness Blog |
“Don’t be afraid of taking the slow lane in life.
It brings
more happiness.”
Jennifer West
I would appreciate some insight on the risks associated with a colonoscopy for ALS patient. I was diagnosed in October 2023 at age 60. Physically, I have seemed to maintain my abilities and have seen my ALSFR score not change. I do have sleep apnea and have a Bipap machine. I still eat, drink, swallow without any issues. I have a slight increase in saliva, but I have had allergy/sinus issues my whole life. So, it may just be the time of year. The pulmonologist with the ALS team stated that during the diagnosis for sleep apnea, only once did my O2 saturation dip below 88%. He stated the risk was minimal for the procedure.
ReplyDeleteWhat about my gut? How will that be impacted by the prep.
Finally, there is a history of colon cancer in my family and my last colonoscopy did find one benign polyp.
Any response would be welcome.