Welcome - About Me


Hello, I’m Dagmar Munn

If you, or someone you know has been diagnosed with ALS (Amyotrophic Lateral Sclerosis, also known as MND or Lou Gehrig's Disease), I invite you to join me as I explore and share the many ways we can live a balanced and resilient life - - all while LIVING with ALS.

I consider you my new friend, because no matter where you live - - we share the ALS experience.

Sometimes my posts will be humorous and some are serious, but I try to always make them helpful. Usually, I add lots of links and resources so you can continue to explore ideas on your own. Remember, as I share my thoughts and experiences with you, I hope you'll share your comments with me.


About me

Years ago, my professional life involved teaching wellness and mind-body health as well as leading many, many fitness classes. In 1996, I was part of a team that created the St. Luke’s Center for Health & Well-Being; a department of St. Luke’s Hospital, in Cedar Rapids, Iowa. (Read my post about our wellness center here)

We were the first hospital-based complementary and alternative therapy center in the state of Iowa and offered classes in yoga, tai chi, Pilates and meditation. Over time, we grew to add Holistic Nursing, therapeutic massage, acupuncture, Reiki and even Holistic Physician services. As the center's Director, my time was spent teaching classes and educating patients, hospital staff and the community on the topic of wellness and our unique services. I spent over twenty-nine years helping others reach and achieve their health goals. 

My father George Nissen is the inventor of the modern trampoline and during my childhood, my family performed in a trampoline act called "The Nissen's;" that promoted trampolines throughout the world. I grew up competing and coaching gymnastics and, have a Masters degree in dance. 

My life was always filled with movement!

In December of 2010, when I was diagnosed with ALS; the challenge for me became one of: how to apply all those wellness and movement experiences to my new situation - - you could say I became my own special class of "one!"
Over the past 9 years, I've written a (free) book about my first year  living with ALS, began writing this blog, been invited to speak at ALS-related events and now write a weekly column for ALS News Today. Throughout, I followed a simple formula for daily living; based on the wellness principles I once taught to others. This formula - - shared through my writings - - supports my goal of living a balanced wellness life - - while living with ALS.

This blog is dedicated to encouraging you to do the same!

Where do you begin?

You can download my book , go to this grand Index of all my blog posts, or use the tabs at the top of this page that list categories for my blog posts. 

By the way, I also write about trampoline history!



You can follow the complete history of my father's company: the Nissen Trampoline Company at my blog: Nissen News - -  http://www.nissentrampoline.blogspot.com where I have a complete archive of company newsletters beginning with the year 1957.



I highlight the events, people and athletes who contributed to the success of trampoline as a sport in my blog: Trampoline History Blog - - http://www.trampolinehistory.blogspot.com

Enjoy my archive of vintage trampoline videos on Youtube at: Trampoline History Videos - - https://www.youtube.com/channel/UCY37miIkK4s1XmZw8ChmzEA/videos

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Contact Dagmar at: dagmunn1@gmail.com

Dagmar Munn
ALS and Wellness Blogger




"Wellness is more than being free from illness. It is a dynamic process of change and growth. A conscious self-directed and evolving process of achieving full potential."
The National Wellness Institute 

20 comments:

  1. This is wonderful...just amazing how you can verbalize these marvelous techniques for all of us in our daily living. Thank you

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    1. I appreciate your kind words and support and hope you enjoy my future posts! Thank YOU.

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  2. Yay! I love your blog, and you are such an inspiration!

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    1. Thank you Christine! I look forward to this year of sharing my thoughts and motivation with you and all my blog readers.

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  3. Hi Dagmar,
    You are the queen of ALS fun stuff ! We call it A LOVE STORY - ALS.
    Wonder if you have an email we could contact you. We are in Redondo Beach Ca. and a few years into the abundant laughable situations. walkindadog@aol.com

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    1. Thanks for the "high five!" I will contact you shortly. Looking forward to it!

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  4. Hello Dagmar,
    I feel blessed to have found you! I live in Wisconsin and also have ALS. Is there any way possible to purchase one one your Father's inventions for bouncing? This is truly amazing! Please email me: carole.fusaro@yahoo.com

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    1. Thank you - good to "meet" you too! I will contact you.

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    2. is it possible to buy one of you Fathers bouncing invention i have als and i am interested in any kind of exersises that you do Thanks my e-mail is brendachunt1@yahoo.com any info will be appreciated have you ever heard of BioXCell?

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  5. Wow, great site--thank you for all your work! Where can I get one of those trampolines? I was also a bouncing fanatic and gymnast and think I could still manage a little supported bouncing.

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    1. Kat - Unfortunately the HealthBounce unit is no longer available from the original vendor. However if you email me on Google+ I can share links to a few distributors who may still be selling them. In general, look for any high quality rebounder that has a bar or hand-hold attachment to use while you bounce.

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  6. This post was very inspiring. My husband has ALS and i often read a lot of posts about it in hopes that i can learn even more than i already know. I think it is amazing that you were able to overcome your obstacles by coming up with a daily life routine. What a great website.

    Aubrey Holloway @ Primary Care AK

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    1. Thank you Aubrey. I hope you have had the opportunity to read my e-book (available as a free download from this blog site) that shares more of my experiences and motivation for others to have a balanced life while living with ALS. Best wishes and regards to both you and your husband.

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  7. Dagmar , happy to have found your blog ,as a fellow pALS it is always great to connect with those that have taken a positive and inspiring path to share. We have also chosen to follow a path to help our fellow pALS and are working on the funding and development of the 1st ALS Patient research app @ www.alsneversurrender.org .. we believe every person matters and hope to involve as many pALS as possible ! Look forward to reading your past posts and enjoying many more new posts to come !

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  8. Hello,
    I'm a long ago friend that wants to send you his thoughts and prayers. Those days of beating your father at Spaceball I will always cherish. Best wishes. Ron

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  9. Hi Dagmar,
    I was diagnosed in March 2017. I enjoyed reading your book and I'm also reading your Blog. You are an inspiration and I've learned a lot about this disease from you. My husband and I have done a lot of research. For us every day is an adventure and we laugh quite often. The support group that I attend doesn't share much information. I ask questions but no one wishes to answer or share, it's a little discouraging, but I don't let it get me down. I have a very positive attitude (as many have noticed and said). I do a some exercise, read, and sewing. I use the walker in the house (trying to avoid running over the dog). I'm fighting on not using the fancy schmancy mobility chair until my legs tell me no more. Thank you from the bottom of my heart.
    BTW, I don't like wearing the Storm Trooper shoes either, where did you get your shoes, I would like to dance in style.

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    1. Hello - - Welcome to my blog posts. I am happy to learn that my book and writings have been of help. My shoes? I bought 3 pairs from Hotter Shoes https://www.hotter.com/us/en They have "style" (not orthopedic) and come in many widths. Don't let the price stop you...they are worth it - - and last for years. I bought the style "Shake." But they have free shipping and returns and are very helpful on the phone. Good luck! Also, don't miss that I am now writing a weekly column for ALS News Today. Just click the link on the upper right of this blog. Dagmar

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  10. Hi Dagmar.....greetings from long past...national Summer Paleastrum in N MI. I looked you up because I was in Canton, Ohio, & I thought you came from there. Anyway, I found you here. And now I know why. I walked this journey with my husband for 5 years. I trust that you have the support you need. You’re now on my prayer list. I remember the day you were brought to camp. You were a brave & courageous girl. I’m sure your blog is helping those who can appreciate your spirit. Tomorrow I’m going to an ALS meeting & I’ll share it with the others. Your family’s generosity at camp touched many lives. Most of the equipment was donated by your dad. I’m thinking about the fun we had as you let me learn to braid your hair every morning. Funny what one remembers. Wish you a best day today.��

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    1. Valerie, hello!!!! So sorry to learn about your husband. I am glad you found me...! I will connect more with you via Facebook...did you know there is a group for NSP campers? :-) Hugs to you across the miles!

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  11. Hi Dagmar!
    Thanks for this wonderful and informative blog. I am a slow progresser PALS, trying to provide reliable information about ALS at my personal blog named Living with ALS. Actually it's written in Turkish but the Google translate can be helpfull. I have learnt many things visiting your blog. I hope your journey will be joyful and long.
    Alper

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