Dagmar
Munn receives a service award from John Deininger and David Jacobs on behalf of the World Acrobatics Society |
In 2019, the World
Acrobatics Society held their annual WAS Congress and reunion, and I was
invited to attend. As the event approached, I worried about what I would wear
and how others would react to my mobility scooter. But what had me feeling
most anxious was that I was one of the evening’s honorees!
The banquet was held in Las Vegas, and I was to be inducted
into the World Acrobatics
Society’s Hall of Fame alongside some famous
Olympians, coaches, and a Hollywood stuntman. Mine was a service award,
given in appreciation for helping the organization with promotional materials
and creating its website.
I received a plaque, a commemorative medallion, a
certificate, and a professional tribute video. And oh my! There’s
nothing like having your entire life put to music and flashed onto a big screen
to get your heart pumping.
Of course, I’ll let you see the video. But first, let me explain
the significance of its final 95 seconds — the section that begins with the
narrator saying, “Diagnosed with ALS in 2010...”
That’s when, in a blink of an eye, my life took a sharp
turn. I was a wellness expert who suddenly found herself on the receiving end
of all that expertise. Faced with the dismal prognosis of ALS, I cobbled
together a simple formula for living.
First, I followed my doctor’s recommendations: attend
the ALS Clinic, take my medications, be willing to use assistive devices,
eat wholesome foods, sleep well, and keep my body moving through gentle exercise.
To build my resilience, I began practicing healthy coping
strategies:
- I
stopped asking, “Why me?” Instead, I looked for ways to accept and adapt to my changing ALS symptoms.
- I
focused my attention away from the negative and toward the positive events of the day. I fell asleep thinking of three things to be grateful for.
- I
tried to be open to new learning experiences and discovered ways to continue to be me.
- I
avoided isolation by staying connected with my family, friends, clubs, and organizations — and all of my new ALS friends around the world.
So, those final 95 seconds of the video encompass the last
nine years of my life with ALS. Those years sped by while, truthfully, I
was having fun.
OK, here’s the video:
Does my future include more milestones? I hope so. And I
hope yours does as well. Remember, I believe that we can live
well while living with ALS.
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A version of this post first appeared as my column on the ALS News Today website.
Dagmar Munn ALS Wellness Blogger |
"Arriving at one goal
is the starting point to another."
John Dewey
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