- ALS used to be considered a rare disease. Now the lifetime risk of acquiring ALS is one in 400.
- Exercise wasn’t recommended for those with ALS. Now it is seen as beneficial.
- ALS patients were expected to live only 2-5 years beyond diagnosis. Now new technologies are improving patient’s quality of life and longevity by ten, twenty years or more.
- Research dollars for finding a cure were scarce. The 2014 “Ice Bucket Challenge” brought funding back to research centers and we are getting closer.
ALS Association (USA)
MND Association (England, Wales & Northern Ireland)
ALS and Wellness Blogger
"Leaning in means learning what your truth is with ALS, and then being able to accommodate for it."
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